EB is The Worst Disease You Have Never Seen.
What is EB?
Help EB Babies in Pain. Donate to our Fast Cure Plan.
HUGS SHOULDN'T HURT
Babies born with the genetic blistering skin disease "EB" (Epidermolysis Bullosa) can have skin so fragile that a loving hug can cause pain and death because large areas of skin can blister and peel off. This causes severe pain, infection, sepsis, amputations, scarring and death. EB children are called "Butterfly Children" because their skin is as thin as a butterfly's wing.
Accelerate Our Fast Cure Plan.
With your monthly donations, you can accelerate our Fast Cure Plan using biomedical research to end the excruciating blistering pain, amputations, inflamed infections, scarring, bullying, and slow deaths experienced by too many babies and children born with EB. We can stop EB together. Three very promising research projects need your urgent funding to start right now:
1. A patented, new medical biotechnology may overcome the mutated EB skin genes with perfect non-mutated genes to create strong, healthy skin. All forms of EB may be cured with this.
2. A patented broccoli sprout extract may increase healthy skin keratin protein to prevent blisters and cure less severe forms of EB.
3. A patented molecule from oatmeal may recruit cells that help heal deep skin wounds.
We will also test therapies in numerous combinations to see if synergistic results can be achieved.
Twenty four hours a day, 500,000 children suffer horrible pain from EB. Imagine the severe pain caused by no skin. Everything hurts. Crawling, playing, touching and even a hug. It is like the worst sunburn of your life that never goes away with pain so severe it can't be stopped with our strongest medicines.
Ending EB pain and death is an urgent, unmet need.
Babies born with the most severe form of EB do not live to see their first birthday. We see a fast cure to the excruciating skinless pain, inflamed infections, amputations, scarring, bullying and slow deaths of too many babies born with EB because of new, patented medical biotechnologies. Hugs should never cause babies pain and death. Your monthly donations can make a life-saving impact.
"Epidermolysis Bullosa (EB) is the worst disease most people have never seen. As a rare disease, EB babies in severe pain with life-threatening wounds are largely neglected by government funding. We are asking you, the people, to help us correct this medical injustice for EB babies born this way."
Aaron Tabor, MD, Founder of No Baby Blisters
Our Doctors are Working on a Fast Cure Plan Accelerated by Your Donations.
Epidermolysis Bullosa (EB) is caused by mutated skin genes. The No Baby Blisters Fast Cure Plan uses a new, patented biotechnology being researched by experts in Epidermolysis Bullosa (EB), gene transfer therapy and pain management at one of America's best hospitals. Your monthly donations will make a huge, immediate impact because it will accelerate research already in progress including a groundbreaking discovery that a patented, new biotechnology increases perfect skin genes to create strong, healthy skin. Also, a broccoli extract that may prevent blisters from forming, and a molecule from oatmeal that may help quickly heal deep wounds.
Dr. Aaron Tabor
Aaron Tabor, MD, Founder of No Baby Blisters, is a NIH-funded skin researcher. He started Gene Facelift and GenArmor, a biotechnology lab developing cures for rare blistering skin diseases, wound healing, and anti-aging improvements in cosmetic appearance.
Dr. Joseph Pergolizzi
Joseph Pergolizzi, MD, is an internationally recognized expert in pain treatment and pain medicine development. He has a special interest in effectively treating pain without the associated adverse effects of many pain treatment options.
Dr. Bernard Cohen
Bernard Cohen, MD, is a Professor of Pediatrics and Dermatology, boarded in Pediatrics, Dermatology, and Pediatric Dermatology at one of American's leading hospitals with a special interest and research in Epidermolysis Bullosa (EB) blistering skin disease and skin infections.
Help stop EB babies' pain and deaths with your tax-deductible donation today. Join our email and text list for updates on our Fast Cure Plan. Become a monthly donor for fastest results.
Your support gives parents hope that their babies will stop suffering and live longer. Let's find a fast cure for EB pain because hugs shouldn't hurt.
No Baby Blisters is a Joy to the World Foundation project.