“PLEASE HELP ME. I need your help for my son to survive." -Baby John's Father
"The blister wound on his leg is the worst without any skin from his ribs all the way down to the tips of his toes."
The father’s depressed plea rang out. His son Baby John, not yet three days old, lay suffering in a bed with severely painful blisters and gaping wounds that threatened his very life. These were bloody blisters and wounds the father could neither heal nor stop from emerging on his son’s tiny face and body time and time again. Time was running out.
When Baby John was born, his parents learned he had rare EB Blistering Skin Disease. They had never heard of the disease. Now immersed in their own daily struggle and nightmare, they are all too familiar with the heartbreak that accompanies it: constant cries of pain, emerging blisters on the baby’s face, head, chest, arms, hands, fingers, legs, feet, and toes, a lack of weight gain due to bloody mouth, tongue and gum sores, and, reopened and bleeding wounds at every painful bandage change. And, for Baby John, the disease is getting worse every day.
"It's so painful to see as parents. I have to hold Baby John down so my weeping wife can change his bandages while we watch him bleed, hurt and cry. We feel helpless and numb."
The infant had been in the hospital three weeks in excruciating pain when the father’s desperate cry came to No Baby Blisters. Of critical concern was the huge wound on the child’s right leg that had no skin from the infant’s lower ribs to his toes. With no access to the type of ointments and advanced bandages that could temporarily help, the father was concerned for his son’s life. Every bandage changed tore more skin away enlarging the wound increasing the risk of death from infection and dehydration. The distraught father knew the danger this wound posed. He prayed for help.
That help came. Thanks to the generous support of our donors, No Baby Blisters was able to immediately send Baby John’s father the much-needed funds for ointments and advanced bandages that saved his son’s leg, which saved his very life!
But Baby John's battle for life is far from over. He lives trapped in special bandages in severe pain with the constant threat of infection, sepsis and death.
Baby John’s father said he is now in a waiting game—waiting to see what toll this disease will take on his son next. His blisters, pain, and skin loss continue putting his life at risk. His toes have fused together. At No Baby Blisters, we are working tirelessly, so that what comes next for Baby John and his family is a cure. Baby John and the other 500,000 children suffering from EB around the world deserve a life free of pain and full of hope.
“We are praying for a miracle because he's crying in pain. A cure is necessary for all babies suffering from EB’s cruel pain,” said Baby John’s father. "I will do everything possible to cure my son. I got a second job now working 16 hours a day to help pay the medical expenses. I'm looking forward to No Baby Blisters help and close interest in my son's pain relief and cure."
EB disease is terrifying. Please help any way that you can. Positive life-saving work is already being done with your help until we find a cure. Let us continue to help Baby John and others like him. Finding a life-saving cure is urgent. Thank you for your compassionate, merciful donations.
Our God-given Mission is to save the sickest, most medically neglected suffering in severe pain with terminal diseases. Their lives depend on your loving donations.
If you can donate Monthly, it will help babies like John never run out of severe pain medicine, life-saving bandages, antibiotics, wound-healing nutrition, and medical care. Monthly donations will also provide critical funding to accelerate our expert, innovative medical research for a cure for EB disease and other devastating diseases. Thank you for any help you can give!
Your donations are saving Ashley‘s life
Tell everyone hello and your name. Hi, I'm Ashley. What does EB Blistering Skin Disease do to your skin? EB causes my skin to blister off and it is very painful. What have the donations done for you? I always have bandages, medicine and food. Your donations make my pain less. What do you want to tell people that have donated to No Baby Blisters to save you and others? Thanks for donating to save my life. God bless you. Thanks again. Bye!
We invite you to become a recurring monthly donor now to make sure Ashley and thousands of other children NEVER run out of severe pain medicine, life-saving surgeries, bandages, medicines and therapeutic nutrition.
Your Donations Literally Saves Lives
This is the leg of Baby John. Your tax-deductible donations immediately sent him life-saving bandages and ointments to save his life until our experts can find a cure for EB blistering skin disease. Right now there is no cure for EB, so Baby John is still fighting for his life in severe pain. Your donation today will instantly accelerate our Fast Cure Plan research for this terrible disease. In severe cases, babies born with EB do not live to celebrate their first birthday. Together, we can change this. This difference in Baby John’s leg is dramatic — and we can do this more often and better with your help! Join us to find a cure. And if you’ve ever wondered if your donation “makes a difference,” look at Baby John. It does! Other EB babies in pain are immediately waiting clean bandages, ointments, and a cure – possible only because of your generous donations.
Your donations are saving Joyce's life
"Hi! I am Joyce. Thank you so much for recently donating to save my life and many other forgotten children suffering with EB Blistering Skin Disease, Hydrocephalus and Cancer. My disease is a painful and deadly disease. Your donation to No Baby Blisters helps me to never run out of bandages, antibiotics and special nutrition. Thank you again." -Joyce
We invite you to become a recurring monthly donor now to make sure Joyce and thousands of other children NEVER run out of severe pain medicine, life-saving surgeries, bandages, medicines and therapeutic nutrition.
EB is the Worst Disease You Have Never Seen
This is tough to watch but these babies need our help. Life expectancy for those who do live is often less than 30 years and filled with blistering, terrible pain, infections, scarring, itching, amputations, bullying, and catastrophic medical bills. Jonathan Pitre (June 2, 2000 – April 4, 2018) was born with a rare genetic mutation called recessive dystrophic epidermolysis bullosa (RDEB), which causes external and internal blistering across the body. He passed with septic shock. Jonathan is a hero among the EB support and research community with an inspiring legacy that will never end. Although our charity didn't have the chance to help him, his heroism should never be forgotten.
What is EB? Learn in 60 Seconds.
EB babies suffer with blisters, skin loss, severe pain, and death.
In EB's most severe form, many babies don't live to celebrate their first birthday
EB (epidermolysis bullosa) is a genetic blistering skin disease that causes a baby’s skin to blister and peel off creating extreme pain and death in its most severe forms. EB is caused by a gene mutation that creates a very weak bond between the baby’s skin layers in the epidermis and dermis. Friction, pressure, and heat on the skin causes blisters and skin loss. Even a hug from mom or dad can cause life-threatening blisters and skin loss, and extreme pain that can’t be controlled with our best medicines. EB affects both genders and all ethnicities equally. It is not getting the attention it needs to find a cure.
No Baby Blisters is the voice for over 500,000 worldwide suffering from EB
Help us rescue EB babies from the terrible pain and death caused by EB. Mutated genes cause the skin to blister off resulting in extreme pain, infection, scarring, amputations, and death. A cure is urgently needed. *Pictured is No Baby Blisters' spokesperson Baby John
In EB's most severe form, many babies don't live beyond a year
Life expectancy for those who do live is often less than 30 years and filled with blistering, terrible pain, infections, scarring, itching, amputations, bullying, and catastrophic medical bills. *Pictured is No Baby Blisters' spokesperson Baby John
Like a butterfly's wings, their skin is so fragile, a simple touch can cause severe pain. Hugs shouldn't hurt
Easily injured skin creates severe pain, blisters, infection, and scars. Forever bandaged, their skin is an inescapable cocoon separating them from their parents' loving hugs.
Why hasn't this disease been cured?
Orphan diseases are conditions affecting fewer than 200,000 people nationwide, like EB, Cystic Fibrosis, Lou Gehrig's Disease, or Tourette Syndrome.* Cures for orphan diseases, like EB, have historically gone unfunded by big pharma and government.
*National Institutes of Health
No Baby Blisters Offers great hope in its multimodal Fast Cure Plan
Our research team includes top doctors with patents in genetic skin therapy, pioneering researchers, scientific innovators, and FDA experts to create an affordable EB cure to end the pain and death.
Our Compassionate Charity Doctors
Aaron Tabor, MD
Aaron Tabor, MD, Founder of No Baby Blisters, is an NIH-funded skin researcher. He is also the Founder and CEO of GENIE Therapeutics, a biotechnology company developing cures for skin scarring, pigmentation and wrinkles.
Bernard Cohen, MD
Bernard Cohen, MD, is a Professor of Pediatrics and Dermatology, at one of American's leading hospitals with a special interest and research in Epidermolysis Bullosa (EB) blistering skin disease, congenital hemangiomas, and skin infections.
Our Fast Cure Plan
- Gene therapy that will override mutated skin gene proteins with healthy gene proteins to stop the blistering and skin cancer. Healthy genes produce healthy skin proteins needed to keep the skin from blistering off.
- Molecular research using affordable ingredients that can reduce inflammation, itching and speed skin healing.
Other's studies have failed in critical ways
Our goal is to create an affordable cure for our forgotten, medically neglected children. Most EB research done to date will end up costing way too much for all EB children around the world.
Because 500,000 people suffer with EB, any cure has to be affordable.
No Baby Blisters is committed to getting an EB fast cure through the FDA, and at an affordable price so no child is left medically neglected, suffering in pain and dying from blistering and infections.
What sets our Medical team and Fast Cure Plan apart from others' failures?
- Experts at performing meaningful studies that move towards affordable cures
- In-depth experience navigating FDA-approval pathways to market-ready treatments
- Research has already started with Dr. Cohen, Professor of Pediatrics and Dermatology, at a leading hospital
Our Challenge: A Fast Cure for EB babies suffering and dying
- Securing research donations for our Fast Cure Plan
- Inviting family, friends, and colleagues to help
- Raising public awareness and social media support
How can we expedite the Cure to stop EB pain and death?
We must all partner together and join corporations, organizations, and other individuals who are able to donate research funds (every amount helps!) to our Fast Cure Plan to end this heart-wrenching disease. Will you join us? Can we count on you to help EB babies?
Will you help us save EB babies from terrible pain and death?
Your Donation Literally Saves Lives!
This is the leg of Baby John. Your tax-deductible donations sent him life-saving bandages and ointments to save his life until we can find a cure for EB. Right now there is no cure for EB, so Baby John is still fighting for his life in severe pain. Your donation today will accelerate our Fast Cure Plan research for this terrible disease. In the most severe cases, babies born with EB do not live to celebrate their first birthday. Together, we can change this. This difference in Baby John’s leg is dramatic — and we can do this more often and better with your help! Join us to find an EB cure. And if you’ve ever wondered if your donation “makes a difference,” look at Baby John. It does!
Our babies have up to 80% skin loss and severe pain from EB Blistering Skin Disease. EB is deadly with no cure. Your donations buy life-saving pain medicines and special bandages, so if God puts it on your heart to donate, the children and their families will be very grateful and blessed. Donations are tax-deductible. No Baby Blisters is a USA 501(c)(3) nonprofit. EIN #82-2743807.
Our Logo's Meaning
The butterfly escaping its cocoon represents an EB cure empowering EB babies to escape their bandages, pain and death to live normal healthy, happy lives.