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What is Epidermolysis Bullosa (EB)?
EB is a rare genetic blistering skin disease that causes a baby’s skin to blister and peel off, creating extreme pain and death in its most severe forms. It is caused by a gene mutation that creates a very weak bond between the baby’s skin layers in the epidermis and dermis. Friction, pressure, and heat on the skin causes blisters and skin loss. Even a hug from mom or dad can cause life-threatening blisters and skin loss, and extreme pain that can’t be controlled with our best medicines.
EB affects both genders and all ethnicities equally. And sadly, it is not getting the attention it needs to find a cure.
Our Expert Doctors
Aaron Tabor, MD
Founder of No Baby Blisters, he is an NIH-funded skin researcher. He is also the Founder and CEO of GENIE Therapeutics, a biotechnology company developing cures for skin scarring, pigmentation and wrinkles.
Bernard Cohen, MD
Professor of Pediatrics and Dermatology, boarded in Pediatrics, Dermatology, and Pediatric Dermatology at one of American’s leading hospitals with a special interest and research in Epidermolysis Bullosa (EB) blistering skin disease and skin infections.
Our Fast Cure Plan
- Gene therapy that will override mutated skin genes with healthy ones to stop the blistering and skin cancer.
- Biotechnology that will replace mutated skin genes with healthy genes. Healthy genes produce healthy skin proteins needed to keep the skin from blistering off.
- Molecular research that can reduce inflammation and speed healing.