How Donations Are Saving Baby Lily’s Life

LIFE-SAVING UPDATES and VICTORIES! 100% proof that your donations stop the severe pain and death of our babies.

Because of your loving donations, our babies suffer less severe pain, blisters, infections, and death. SADLY, our charity’s donors are only ones helping our children so your donations are literally life-saving. Please see our latest available updates below. Thanks for being a real life-saving Hero!

Baby Lily Latest Update Through Tuesday, April 15, 2025

“Lily is having fevers and a lot of pain from her skin blisters, throat blisters and teeth.” -Lily’s mom

EB is a blistering skin disease that attacks Baby Lily’s entire body, not just the outer skin. But because of your donations, Baby Lily will NEVER run out of life-saving pain medication, clean bandages, and antibiotics.

Because of our great hearted donors, Lily continues to survive her 80% skin loss pain and infections. She has survived many hospitalizations requiring intravenous (IV) antibiotics and blood transfusions. Lily loses a lot of blood from her deep blisters and bandage changes. This is a chronic genetic condition called EB, a blistering skin disease.

If you are not already a Monthly HERO GUARDIAN ANGEL Donor, will you please pray about donating a small $5 per month to save Lily? You can guarantee that Baby Lily and others will NEVER run out of pain medicine, medical supplies, and emergency life-saving hospitalizations.

Baby Lily Prior Updates

• “Lily has big wounds on her head with pus and a fever. We are trying to keep her from removing the bandages when she sleeps.” -Lily’s mom
• “Lily has so many blisters on her back. She gets a high temperature each morning and night, but I am watching to make sure it isn’t an infection to go to the hospital again.” -Lily’s mom
• “Lily had a blood transfusion and IV antibiotics for 14 days.  She is alive. Thank you!” -Lily’s mom
• “Lily’s facial abscess is getting worse so we are going back to the doctor today.” -Lily’s mom
  • Thanks to our heroic donors, Lily is immediately getting checked for cellulitis (a dangerous skin infection) and will receive intravenous (IV) antibiotics in the hospital if needed to prevent the infection from spreading deeper into her face and endangering her life.
• “Lily woke up with a deep abscess in her right chin. She may have scratched it. I wake up when I hear her crying at night from the itching and pain. She has a new blister developing over her full forehead. Her foot is also hurting and has a skin infection.” -Lily’s mom.
  • Thanks to our donors, Lily had immediate antibiotics ready to treat her face and foot. Lily’s toes are fused together from years of painful blisters and scarring, so she can’t walk.
• “Lily had a high fever last night with a large blister developing on her forehead. I pricked the blister and drained the pus.” -Lily’s mom.
  • Infections always have to be watched closely for our precious children like Baby Lily because an infection can quickly get into the bloodstream causing sepsis and death. EB is a genetic disease that never stops trying to kill Baby Lily, so thanks to everyone helping monthly to keep her alive.
• “Baby Lily still has lots of wounds on the back of her head.” -Lily’s mom. You can see the pus from the infection so her temperature is being watched closely to make sure it doesn’t spread into her bloodstream. EB is a genetic disease that never stops trying to kill precious Baby Lily, so thanks to everyone helping monthly to keep her alive.
• “Baby Lily woke up with lots of blisters and wounds all over her, and her head also had pus from infection. I think this is the reason she has a fever. Lily’s illness is forever and repeating Thank you for the great messages. I feel relieved because most of the time I am always stressed with anxiety.” -Lily’s mom
  • Baby Lily’s body is covered with blisters and deep wounds causing severe pain, blood loss and infection. Because of our great hearted donors, Baby Lily has life-saving medication, clean bandages, and antibiotics, but her genetic skin disease will never go away.
    
    Baby Lily’s body is covered with blisters and deep wounds causing severe pain, blood loss and itching. Because of our great hearted donors, Baby Lily has life-saving medication, clean bandages, and antibiotics, but her genetic skin disease will never go away.
    
    Many great hearted donors have asked to learn more about precious Baby Lily. Her living nightmare never ends. Please see the bandage changes that Lily’s heroic mom has to perform multiple times per week to prevent infection and death. The bandage changes rip off parts of Lily’s non-blistered skin and are very painful and bloody for Baby Lily. Because EB Blistering Skin Disease has no cure, we ask you to donate monthly so Baby Lily and others NEVER run out of life-saving pain medicine, bandages, and antibiotics. Thank you!
    
    Because of our Donors, Baby Lily survived the severe skin infection requiring hospitalization. She is relieved to be back at home taking oral antibiotics and using topical antibiotic creams. She has extremely painful blisters on her back. Her mom says she is still constantly crying. Please pray for her. Thank you for your kind heart and donations!
• “Thank you so much to the donors for always helping us financially. Lily is being discharged. I am so mentally and physically down with Lily being this sick. I can’t stop thinking what could happen to her knowing that other moms have lost their children because of this disease Lily has a very painful blister on her foot where the IV was inserted.” -Lily’s mom
  • Lily was urgently admitted to the hospital for a super high fever over 104° F / 40° C with a massive skin infection. She could have easily died today, but she received IV antibiotics and survived because of our great hearted donors. Our children literally depend on you to survive.

• “Lots of blisters came out all over her body this morning.” -Lily’s mom
• “I HAVE SEVERE PAIN.” -LILY
• “Her ears have blisters and infections. Then her face peeled off, too.” -Lily’s Mom
• “Every morning when she wakes up, she always cries because of the pain of her wounds. Every day there are many big wounds This is what we are fighting.” -LILY’S MOM
  • Baby Lily is currently battling extreme pain from lots of blisters on her forehead and back of her head. This is one of her ‘hot spots’ and it is a very traumatic event for Baby Lily and her mom to have her entire forehead blister off

---

Because of your donations, Baby Lily will NEVER run out of life-saving pain medication, clean bandages, and antibiotics.

Because of our great hearted donors, Lily continues to survive her 80% skin loss pain and infections. She has survived many hospitalizations requiring intravenous (IV) antibiotics and blood transfusions. Lily loses a lot of blood from her deep blisters and bandage changes. This is a chronic genetic condition called EB, a blistering skin disease.

If you are not already a Monthly HERO GUARDIAN ANGEL Donor, will you please pray about donating a small $5 per month to save Lily? You can guarantee that Baby Lily and others will NEVER run out of pain medicine, medical supplies, and emergency life-saving hospitalizations.